Come out on Saturday June 8th and WODwithREESE for Sweet Baby Sloane. Sweet Sloane is Deaf and in need of Cochlear Implants. A message from Sloane’s Mama on Cochelar Implants for Sloane below.

What’s a Cochlear Implant?

Funny, had you asked me the start of December, I likely wouldn’t have known a thing. Now, I’m reading all the things, and we have the insane responsibility of choosing a device for our sweet baby girl (there are three main brands of Cochlear Implants) What will happen is Sloane will receive two implants, one on the right and one on the left, they put the implant on either side of her skull, and then spin a tail of electrodes through her cochlea (where all of the fine hair cells are, that don’t work in Sloane’s case, due to her Connexin 26 Gene Mutation) After a month of healing after surgery (and not hearing) we have what’s called activation day. This is when Sloane gets her external processors, worn bilaterally and they will be turned on. It’s a huge day. If you want to sob, look up cochlear implant activation day on YouTube. Bring tissue. These processors magnetize to the implants from the outside. Attached to that is a microphone. The mic, takes the sounds from the outside, it runs from the implant, through the electrodes, and from there, they stimulate the auditory nerves and the brain takes in the sound. It interprets it. It perceives it.

With that being said, this will be a very long road. Lots of mapping her implants and tons and tons of therapy. Sloane has no clue what it means to hear sound, or that she will associate sound to a particular thing. Like a car running, or a dog barking, or a doorbell ringing. They turn the sound on very conservatively, and from there as the brain and system acclimates, over time, they “map” it according to Sloane and her devices.

HEATS WILL RUN AT 9AM, 10AM & 11AM

20 MINUTE CAP

1 round

5 Bear complex

14 Front Rack Lunges

19 Burpees over the bar

Followed by an AMRAP in the remainder of the time:

6 Clusters

10 Toes to Bar

19 KBS

Get To know FINNLEY GRACE!

Finnley is two years old now and has been fighting her whole life. When she was four months old they discovered a rash, went in for blood tests and her white blood cell count was through the roof. They were worried she had developed Leukemia and the family was flown out to Seattle Children's Hospital. It was determined that Finnley didn't have Leukemia, but that she did have E.coli in her blood. After about 14 days in the hospital she wasn't getting better they did more tests and found she has Severe Combined Immune Deficiency. She undergoes weekly infusions to help keep her healthy. The family has continued to fly out to Seattle every 6 months. The end of April they headed back to SCH for the semi annual appointment, when they got back Finnley tested positive for Norovirus and was very dehydrated, needing to be hospitalized in Great Falls. They soon found out that they needed to be back in Seattle as some blood work didn't come back as they had wanted. They have been in Seattle since May 29th, having numerous tests and procedures done. She had GI procedures, Infusions, and a Bone Marrow. The family has a long road ahead and could really use all the prayers.

Come Join us on Saturday February 9, 2019 in honor of our little superhero BROC!

Here is Broc’s Story!

Broc was born a happy healthy boy in 2007. Broc was a very happy baby. At 8wks old it was discovered that he had a heart murmur. We were sent to Riley Children’s Hospital for his first cardiac cath. At 12wks old another urgent surgery was scheduled to repair the narrowing. The day Broc turned 2yrs old he became very ill with what we thought was strep throat. He ended up being admitted to La Porte Hospital for high fever. In 2010 Broc was dx with 16p11.2 Duplication Syndrome. 2010 Cardiac cath and OHS for AV repair. 2011 Broc started to have increased right leg pain and leg length discrepancy. His right leg had stopped growing due to the lack of blood supply. In June 2012 Broc underwent an ilio-femoral bypass surgery. 2013 He was dx with Ehlers Danlos Syndrome Type 3. 2014 We then discovered that Broc had Chiari Malformation 1 and a syrinx. At the end of that year Broc was dx with CVID .Broc also had a NISSEN Procedure.2015 Broc had a revision of his femoral bypass surgery which didn’t go so well. Broc also had an NJ tube placed to see if we could bypass his stomach and just feed his intestines. Unfortunately that didn’t last long and Broc had a GJ tube placed in his belly. He also had a bone marrow biopsy to see if we could figure out his immune issues or to see if we are missing anything. Broc was eventually placed on TPN for nutrition. It was a very difficult decision to make but a needed and urgent one as Broc was still losing weight and becoming very weak at times. Broc also had a broviac central line placed in his chest. 2016 We did WES and discovered that Broc has a variant on a Gene Mutation (LTBP4). He is the only one in the World with this variant. Therefore we have no treatment or cure. New dx nurogenic bladder caused by a Tethered Cord. He was also dx with Laryngeal Cleft Grade 1. 2017 & 2018 Broc has had some serious bacterial blood infections and continues to have known and unkown viral illnesses. He was also dx with Tourette Syndrome and OCD. He also suffers from anxiety,ADHD and sensory issues. He attends OT and PT once a week to help him. He continues to receive IV Immune therapy weekly as well as other interventions to keep him stable. Broc receives treatment from Riley, CS Mott and Cincinnati Children’s Hospital.

Come out and Join Reese and the gang at CrossFit Mount Kisco on Friday night June 8th in honor of beautiful Lexi! Lexi has an unknown rare form of mitochondrial disease and we are joining together to raise awareness for children everywhere fighting similar battles! All donations will go to Lexi's Family to help cover her many many medical expenses. WOD with one of the best coaches out there- Coach Phil Itwaru and then share in the wine festivities to follow celebrating Lexi's fighting spirit! 

DSCF Crossfit Kids is partnering up with Tales of Reese for a charity WOD in honor of little Tommy Vasile III.

Tommy passed away tragically before his second birthday on January 31, 2014. While his time with us was far too short - Tommy's life and remarkable strength has touched so many. For those of you that know the Vasile family you know firsthand their inspiring courage, love, and strength.  Tommy had an undiagnosed medical condition that caused him to have seizures and did not allow him to do things that all of us do on a daily basis; walk, talk and eat to name a few.  We called him our "Superman" because of the fight he displayed throughout his 20 months of life.

In honor of Tommy we will donate the proceeds to Maria Fareri Children's Hospital. Feel free to wear your superman T-shirts!

Meet baby Aaliyah! She is only 7 months and suffers from Biliary Atresia which affects her bile ducts and liver. She is in need of a liver transplant and is on the wait list. With many tests and procedures ahead of her the family can use as much support as possible. Please sign up or donate!

Liz Beth had emergency surgery on October 29, 2016. A surgery that was supposed to take 1 hour ended up taking almost 4 as the doctors removed a bowling ball sized tumor. This tumor is a cancerous Dysgerminoma tumor. If she has any chance to win this battle she needs treatment to begin immediately. Unfortunately in the weeks to follow the family learned that their health insurance is basically worthless.  They denied their claime and will not cover any treatments or the over 20,000 dollar surgery to remove the tumor. Liz Beth has a two year old son. Any donation will help!

Baby Tallulah is just 7 months oldand is fighting neuroblastoma cancer. Please come out and support this amaxzing family! Any donation big or small will help them as they had to leave their hom and travel to florida to live at a specialized hospital for her treatments.

Come out on October 1st and join in a great event that will help support our Baby of the Month! Listen to a mini Solace Seminar on Toxic Nutritional Beliefs, Body Image, Mind over Matter and much more! To be followed by a WOD with REESE workout! Join in and help to Kick Tail for A Cause!

Please join us on Saturday, September 17 for our third annual
Going Gold Event in honor of baby Charlie. We invite all members/CrossFitters to come workout with us to show our support. We will have an 8AM and 9AM WOD. Registration information will be up in August.

This is a time to highlight the good and spotlight the need to dedicate more research to help fight childhood cancers and to help children fighting off other illnesses. This year we're partnering with Tales of Reese to help this beautiful little girl.

We will have a donation page up in the coming months.

WOD
"Hope"
Three rounds of:
Burpees
75 pound Power snatch...
Box jump, 24" box
75 pound Thruster
Chest to bar Pull-ups
Rest 1 minute

*1 min each station
***Scaling options will be provided***

Charlie's story:

Charlie Is a beautiful 8 month old baby girl. At 20 weeks pregnant, they learned that Charlie had congestive heart problems. At four months old, Charlie had her first open heart surgery at Children's Hospital in Oakland, about an hour drive from where she lives. She came through very strong, but it seems that this is just the first of what could be many surgeries. Tony continues to work, and makes the drive to the hospital as often as he can, and Korie comes back and forth as well. They do have insurance, but it's not covering everything. They owe $6000 just from the birth and hospital stay, and have yet to receive the bill for this first surgery.

Come out and join us on Saturday August 20th at CrossFit Key West! Enjoy an amazing Nutrition seminar in honor of Judy Taveras who is fighting a brain tumor. The seminar will will address

-         Overview of scientific nutrition

-        Science behind genetics

-         Customized supplementation

-         Education on meal programming

-         Understand metabolism

-         Truth about “diets”

Ride with Reese in honor of Baby Grace! At 6 month old, our daughter Grace, was diagnosed with Atypical Teratoid/Rhabdiod Tumor (ATRT). An extremely rare, very difficult to treat pediatric brain tumor. The tumor has been fully resected and there are no other tumors present in her brain or on her spine. Her spinal fluid was negative for cancer cells. Grace has already completed 5 rounds of chemotherapy, 1 stem cell harvest, and 3 stem cell rescues. In December, it was determined that Grace was No Evidence of Disease.  By the first week in January, Grace had facial paralysis that ultimately was determined to be caused by a recurrent tumor.  The cancer was back. She started Proton-Beam Radiation Therapy in January 13 and completed the treatment on February 24. She is currently receiving maintenance chemo. Grace has endured a many setbacks, like a subdural hematoma, shunt revision, c. Diff, numerous infections, and a PICC reinsertion. She is a fighter! Grace has a long road ahead, but we have faith in God that she will survive and thrive.

Come join us for a Special WOD with REESE honoring Jillian Hawkes and Raising Awareness for Autism!

Reese is so excited to partner with some amazing CrossFit Coaches in the Florida Keys! Come join us as we WOD all day long in honor of baby Charley!

Come join us for a Special WOD with REESE to be followed by a wine and cheese party!! In honor of sweet little Rylie!

Join Reese for his first ever “ReeseFit” event! Festivities will include Zumba, Bootcamp & Spinning! In honor of the KICKcancer Movement and Paige Mitchell - a young newlywed fighting cancer! And get a sneak peak of all of Reese’s new apparel lines!!!

Over 40 boxes invited to attend! We can barely contain our excitement! Join us on April 25th in honor of Baby Milleigh. Sweet little Milleigh was found not breathing in her crib when her parents found her and administered CPR and saved her life. She now suffers from many delays and Cerebral Palsy. Come join Reese and WOD for a Great Cause! Tons of Vendors will be there as well to add to the festivities!

Please join us on February 28th as we Spin with the amazing Courtney Candullo in honor of Baby Gabby! Help Gabby keep her vision and fight her Brain Tumor!

Please join us on February 7th for a special WOD with REESE in honor of baby Angelina! Poor Angelina has a mitochondrial disease that affects her neurological system. She suffers seizures and developmental delays and currently is praying for a cure. Please come out and join us for a great workout and an even better cause!

lease Join us on December 13th for a very special WOD with REESE in honor of bay Jo! Poor Baby Jo has severe Motility issues and is on a constant feeding tube! Christina Marraccini will be teaching a kids WOD and Mike Clifford will be there autographing his new music album!